Celine Dion's sister 明らかにする/漏らすs the megastar is NOT in a 車椅子, にもかかわらず (人命などを)奪う,主張するs she's struggling to walk... but ビデオs of other 苦しんでいる人s of stiff person syndrome shows the 荒廃 that could を待つ her

  • Celine Dion's sister has 明らかにする/漏らすd the singer, who has been 診断するd with 無能にするing Stiff Person Syndrome, doesn't yet need a 車椅子
  • Other 苦しんでいる人s have are using TikTok to 株 the reality of living with it
  • READ MORE: What is Celine Dion's one-in-a-million 病気?

悲劇の singer Celine Dion is not yet reliant on a 車椅子 to get around and 計画(する)s to return to 成し遂げるing, によれば her sister, actor Claudette Dion.?

Ms Dion shut 負かす/撃墜する online 憶測 that the 55-year-old singer is unable to walk 予定 to the rare and cruel disorder, stiff person syndrome (SPS).

The neurological 条件 in which the 団体/死体 attacks 神経 独房s. It is 進歩/革新的な and incurable.?It 厳しく 衝撃s mobility and can turn 苦しんでいる人s into 'human statues,' leaving them struggling to walk or talk.

The 条件, which is thought to 影響する/感情 just one in a million people, can also lead to spasms that 生成する enough 軍隊 to fracture bone.

Celine Dion revealed in December that she was suffering from the one-in-a-million condition stiff person syndrome

Celine Dion 明らかにする/漏らすd in December that she was 苦しむing from the on e-in-a-million 条件 stiff person syndrome

Usually, 患者s are 診断するd around ages 30-50, and they are mostly women.?

The 星/主役にする first 明らかにする/漏らすd her diagnosis in December 2022 経由で a teary Instagram 地位,任命する, and months later 取り消すd her world 小旅行する, which was scheduled to begin at the end of 2023.

In September, a ビデオ surfaced on YouTube する権利を与えるd 'Celine Dion's Family 明らかにする/漏らすs How She Is Dying', in which an 身元不明の 語り手 says that her incurable 病気 is '進歩ing very quickly'. The ビデオ has since been republished on TikTok, where it received more than 430,000 見解(をとる)s.

The clip 誘発する/引き起こすd 噂するs on social マスコミ that the Grammy award-winning artist is now 車椅子-bound and struggling to move.

However, Celine's sister has 否定するd this is the 事例/患者.?

'I know that morally, mentally, she is strong. She is not depressed at all … she really has the joy of living. We will get through this,' her sister, Claudette Dion, told the French-language 場所/位置 showbizz.逮捕する.

As for the 噂するs, Ms Dion said:?'Why do they say she is in a 車椅子? Why do they say she had ? Why are you inventing?'

一方/合間, 患者s with stiff person syndrome are taking to social マスコミ to 文書 their 条件 - and 明らかにする/漏らす the reality of day-to-day life with the 破滅的な illness.?

On TikTok, young 苦しんでいる人s 証拠 their 苦痛 - which feels like muscles are '存在 shredded off the bone,' 同様に as violent muscle spasms.

One 苦しんでいる人 is 33-year-old Chelsea Lawrence from Minnesota (below), who spent six years in agonizing 苦痛 before receiving a diagnosis of SPS.?

She 文書d her 悪化するing health to her 150,000 TikTok 信奉者s, 定期的に 株ing ビデオs of herself writhing in 苦痛 and struggling to breathe as her muscles 強化するd.?

In a video posted last year, Ms Lawrence showed herself screaming in intense pain while splayed out in her bed
In a video posted last year, Ms Lawrence showed herself screaming in intense pain while splayed out in her bed

In a ビデオ 地位,任命するd last year, Ms Lawrence showed herself 叫び声をあげるing in 激しい 苦痛 while splayed out in her bed

In one ビデオ 地位,任命するd last year (below), Ms Lawrence filmed herself lying in bed with her 四肢s splayed out.

?As she 叫び声をあげるs in 苦痛, text appears on the 審査する reading, 'My muscles are in so much 苦痛 it feels like there [sic] 存在 shredded off the bone. Then 新たな展開d and pulled! They just get tighter and tighter!'

'I can get these stiff attacks a couple times a week!' the text reads. 'My chest feels like someone sucked all the 空気/公表する out! 脚 is 新たな展開d and foot cramping so hard!'

As 苦痛 医薬 kicks in, her 四肢s relax.

While there is no cure for stiff person syndrome, 麻薬s such as muscle relaxants and tranquilizers can be given to 緩和する the symptoms.

Some 患者s with more 厳しい symptoms are also given more potent 薬/医学s that 鈍らせる 負かす/撃墜する the 免疫の systems.

In another ビデオ 地位,任命するd in November, Ms Lawrence appears to be 窒息させるing while lying in bed as her 直面する twitches and she struggles to get any words out.?

'Fully conscious and slowly 窒息させるing. This is how 急速な/放蕩な I have 拒絶する/低下するd from the hospital,' text on the 審査する reads. 'A python is slowly wrapping around.'

Ms Lawrence passed away in April, though her 原因(となる) of death is 不明瞭な. It is rare that the 条件 is 致命的な. However, many 患者s die from 複雑化s such as 血 clots and 負傷させる 感染s.

Stiff person syndrome sufferer Chelsea Lawrence died in April 2023, although her cause of death remains unclear.

Stiff person syndrome 苦しんでいる人 Chelsea Lawrence died in April 2023, although her 原因(となる) of death remains 不明瞭な.


Rose Merrill, 24, from Colorado, also has SPS and 定期的に 株 updates on her 病気 on social マスコミ. In one ビデオ, she is seen violently coughing and spasming.?

She says in the ビデオ that her 肺s are 'filling with fluid that I have to suction out' and her 団体/死体 is '徐々に turning against itself.

'I'm losing my independence, my ability to get out of bed, my ability to stay awake through an entire day or to sleep through an entire night.

'And yet I have to 受託する that this nightmare is somehow my normal.'?

@thefairygrandmother

I've been struggling lately. We've exhausted almost every possible 治療 選択. The ones I have left get scarier with more 味方する 影響s. The mobility 業績/成就s of 存在 able to walk a little pales in comparison to losing the independence of my powerchair. My life has become my bed. When I go out, someone else 押し進めるs my 車椅子, and yet even so I am still quickly exhausted. I'm struggling, and I think it's time to 収容する/認める it. It's so hard 存在 賞賛するd for 進歩 while experiencing such hardness. I feel lik e a 詐欺. Chronic illness is hard, and I wonder often when my 団体/死体 will just 降伏する to it fully. At the same time though, this account gives me a 推論する/理由 to fight. My boyfriend and family and pets give me something 価値(がある) living for, にもかかわらず the 巨大な 苦しむing life brings. I know that while my 未来 will 含む/封じ込める physical hardships, I will 打ち勝つ them mentally and find joy again like I have so many times before. #lifelimitingconditions #stiffpersonsyndrome #chronicillness

? som 初めの - 大西洋 公式文書,認めるs

?Jennifer Trujillo, 39, a mother-of-six in Washington, began 苦しむing SPS symptoms during her pregnancy in 2015, によれば her GoFundMe page.? However, she wasn't 診断するd until 2020.?

Her ビデオs on TikTok show her with broken bones and dislocated 共同のs, lying on the 床に打ち倒す 叫び声をあげるing and struggling to breathe.?

In one ビデオ 地位,任命するd in 2021 , she lays on the ground as four of her children surround her to help during a two-and-a-half-hour 苦痛 and spasming attack.

'We're going to get through this together,' one of the children says.?'I love you,' another one 追加するs. 'It's not your fault.'

専門家s don't know the exact underlying 原因(となる) of SPS, but they believe?it may be 原因(となる)d by an overreaction of 独房s within the 免疫の system. Around 40 パーセント of 苦しんでいる人s also have the autoimmune 条件 type 1 糖尿病.?

Other autoimmune 条件s like?vitiligo, which 原因(となる)s white patches of 肌, and pernicious anemia, are likewise associated with it.

In stiff person syndrome, the 免疫の system attacks a protein that helps make?gamma-aminobutyric 酸性の (GABA), which 規制するs モーター neurons ― the 神経s that 支配(する)/統制する movement.

Jennifer Trujillo, a mother-of-six with SPS, has shown videos of her children helping her through spasming attacks

Jennifer Trujillo, a mother-of-six with SPS, has shown ビデオs of her children helping her through spasming attacks

Low levels of GABA 原因(となる) the 神経s to continuously 解雇する/砲火/射撃 when they are not supposed to, resulting in spasms and rigidity.?

Spasms can be 誘発する/引き起こすd by loud noises, with the 条件 also 原因(となる)ing 高くする,増すd sensitivity to sound.

Touch and emotional 苦しめる can also be felt more intensely as a result of the 条件.

The spasms can be so 厳しい they 原因(となる) people to 落ちる over or lead to difficulty walking and other disabilities.

Because of its rarity and baffling symptoms, which are often mistaken for Parkinson's 病気 or 多重の sclerosis (MS), 診断するing the syndrome can take a long time.

But if doctors 嫌疑者,容疑者/疑う stiff person syndrome, they can 確認する it with two 実験(する)s.

The first looks for 明確な/細部 antibodies in the 血 that are 解放(する)d in 返答 to? glutamic 酸性の decarboxylase (GAD).

The second 実験(する) is a one that 対策 電気の activity in the 神経s, called electromyography (EMG).

Doctors 挿入する a needle 直接/まっすぐに into 影響する/感情d muscles and 記録,記録的な/記録する electric activity in them.

にもかかわらず Celine Dion's 苦痛, she's not given up on 計画(する)s to return to the 行う/開催する/段階, によれば her sister.

Claudette Dion told showbizz.逮捕する that the icon is recuperating in Denver and に引き続いて her doctors’ care 計画(する) closely because she 'wants to come 支援する, that’s for sure'.