'Milo woke up and as I was trying to 慰安 him he stopped breathing': Mother's horror as her baby boy died in her 武器 from a sudden heart attack

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Milo Sturgeon's parents were just getting over the shock of learning their happy, '冷気／寒がらせるd-out' baby boy would likely never walk or talk.

But then the gorgeous 11-month-old was suddenly taken from them by a heart attack 関係のない to his incredibly rare genetic disorder.

Seven months earlier the blue-注目する，もくろむd, fair-haired baby was 診断するd with MECP2 duplication syndrome, which 原因（となる）s 穏健な to 厳しい 知識人 disability.

Milo Sturgeon died after a heart attack 老年の just 11 months, seven months after he was 診断するd?with a genetic disorder that only has 200 事例／患者s 世界的な

Kirsten and Craig Sturgeon sold their house to downsize their mortgage and moved to Southport on the Gold Coast to be closer to the hospital and special school Milo would need.

'We were 準備するing for the challenges ahead and just trying to enjoy him at the same time,' Ms Sturge on told the Gold Coast 公式発表.

His disorder was so rare - there are only 200 事例／患者s 世界的な - the only 手がかり（を与える） the couple had that something was wrong was that he was not eating enough or putting on enough 負わせる in the first six weeks of his life.

The hospital had never seen?MECP2 before so after all the 実験（する）s it ran didn't show any 医療の 問題／発行するs Milo was sent home. Three weeks later he was 支援する.

His parents were 警告するd it would leave him with 深遠な mental retardation, and he would be ありそうもない to walk or talk and を煩う epileptic seizures

Finally at four months old, genetic 実験（する）ing 明らかにする／漏らすd the horrible 原因（となる） of Milo's stunted 開発.

His par ents were 警告するd it would leave him with 深遠な mental retardation, and he would be ありそうもない to walk or talk and を煩う epileptic seizures.

'We were 用意が出来ている that he might have a few challenges but never thought he would be 完全に 無能にするd,' Ms Sturgeon said.?

But Milo was at least happy and besides needing a feeding tube so far did not have many symptoms that would 原因（となる） anyone to think he was not just a normal baby.

Milo with his four-year-old brother Seth who 提案するd visiting him in heaven on a spaceship

Then last month he started vomiting after 存在 fed, so the Sturgeons took him to hospital - not knowing he would never come home.

He started to get irritable, have trouble sleeping and then 'puffed up' in a way his parents had never seen before.

Doctors transferred Milo to Lady Cilento Children’s Hospital in Brisbane for specialist care and after a 殴打／砲列 of 実験（する）s he was 診断するd with another very rare 条件.

It was this heart problem, idiopathic pulmonary arteria l hypertension which puts 抱擁する 圧力 on the 組織／臓器's 権利 味方する, his parents believe killed him.

After the doctor told Ms Sturgeon the news and 解決するd to let him 残り／休憩（する） over the 週末 before coming up with a 治療 計画（する）, Milo suddenly went into cardiac 逮捕（する）

After the doctor told Ms Sturgeon the news and 解決するd to let him 残り／休憩（する） over the 週末 before coming up with a 治療 計画（する）, Milo suddenly went into cardiac 逮捕（する）.

'[The doctor] literally walked out of the room, Milo woke up and as I was trying to 慰安 him, he just changed colour, his 注目する，もくろむs rolled 支援する and he stopped breathing,' his mother said of the moment she will never forget.

More than a dozen people gave him 48 minutes of CPR before he had to be 麻薬中毒の up to life support to keep his tiny heart and 肺s working.

A booklet 手渡すd out at Milo's funeral celebrating his life

Sadly Milo's brain was so 不正に 損失d by the heart attack that he never woke up, and died two days later after his four-year-old brother Seth said goodbye.?

'We told him Milo has gone to heaven and the other day his idea was we could go see him on a spaceship. He said it like he’d come up with a 解答 no one had thought of,' Mr Sturgeon said.

Milo's grandmother Kim penned a touching 尊敬の印 the day after his passing, 説 the family was 'heartbroken beyond 手段'.

'Milo fought so hard to stay, but it was not to be, he will be so lovingly remembered for blessing us all with bubbly babbling, rollie pollie-ing, 平易な going nature, the world longest eyelashes and beautiful blue 注目する，もくろむs, pouty mouth 広大な／多数の／重要な hair, and a gorgeous 削減（する） 直面する,' she wrote.

The family held a 記念の service on December 4 and asked that instead of floral 尊敬の印s that 会葬者s make a 寄付 to Lady Cilento Children’s Hospital (pictured) in his memory

'He was loveable playful and 井戸／弁護士席 on the way to developing his own unique personality. Our lives are so much richer for 存在 blessed by your presence. Another gorgeous angel for heaven.'

The family held a 記念の service on December 4 and asked that instead of floral 尊敬の印s that 会葬者s make a 寄付 to?Lady Cilento Children’s Hospital in his memory.

Family and friends who could not …に出席する, along with dozens of strangers, raised more than $5,600 online.

'The PICU truly went above and beyond in caring for Milo during his final days and we would like to show our 感謝 by raising this money in Milo's memory,' his parents said.