EXCLUSIVEFresh ordeal for grieving family of teen girl with rare degenerative 病気 who died fighting NHS 合法的な 戦う／戦い to get doctors to 身を引く 治療 as they're told to 返す thousands in child care 利益

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The grieving family of a 十代の少年少女 who died while locked in an end-of-life 合法的な 戦う／戦い with the NHS is 存在 軍隊d to 返す thousands of 続けざまに猛撃するs in child care 利益s.

Sudiksha Thirumalesh, 19, who had a rare degenerative 病気, died last September as she fought doctors' 試みる／企てるs to 身を引く 治療 and move her to end-of-life care.

In a fresh blow to her family, the Department for Work and 年金s has （人命などを）奪う，主張するd the A-level pupil was not する権利を与えるd to the childcare element of the 全世界の／万国共通の Credit paid before her death because she was in hospital for more than six months.

Her 荒廃させるd parents, who already spent their life 貯金 on 合法的な 料金s fighting the NHS, have been left 直面するing 需要・要求するs to cough up almost £5,000, にもかかわらず keeping the 利益s department up to date with their daughter's 苦境.

'This has come as another 破滅的な blow to our family. It feels like the system is kicking us while we are 負かす／撃墜する. We did everything by the 調書をとる／予約する and have been punished for it,' her father Thirumalesh Hemachandran told the Mail.

Sudiksha Thirumalesh, 19, who had a rare degenerative 病気, died last September as she fought doctors' 試みる／企てるs to 身を引く 治療 and move her to end-of-life care. Pictured: 老年の three

In a fresh blow to her family, the Department for Work and 年金s has （人命などを）奪う，主張するd the A-level pupil was not する権利を与えるd to the childcare element of the 全世界の／万国共通の Credit paid before her death because she was in hospital for more than six months. Pictured: 老年の 14

Her 荒廃させるd parents, who already spent their life 貯金 on 合法的な 料金s fighting the NHS, have been left 直面するing 需要・要求するs to cough up almost £5,000, にもかかわらず keeping the 利益s department up to date with their daughter's 苦境. Pictured: Fighting for her life を受けるing 治療

Her father Thirumalesh Hemachandran (left) told the Mail it was 'another 破滅的な blow to our family'. Pictured: Sudiksha's family 含むing her father, her mother Revathi Malesh Thirumalesh and her brother Varshan

Sudiksha, who 苦しむd from the same rare genetic mitochondrial disorder as little Charlie Gard, was 認める to Birmingham's Queen Elizabeth Hospital in September 2022 after 契約ing Covid.

Mr Hemachandran 知らせるd the DWP of her circumstances, telling 公式の／役人s that にもかかわらず her ill health his 勇敢に立ち向かう daughter was 決定するd to continue her A-levels at the hospital's school.

Sudiksha's parents, who were 軍隊d to give up running their shop to care for her when she was moved to the 集中的な care 部隊, continued to receive 支払い（額）s from the department.

At the time, Sudiksha, who could be identified only as ST because of a drac onian 法廷，裁判所 order which was 解除するd after her death, was fighting in the 法廷，裁判所s to 証明する she had the capacity to 決定する her own 運命／宿命.

Her father 追加するd: 'The transparency order 妨げるd us from getting the help we needed during the toughest time of our lives.'

Sudiskha had hoped to get 井戸／弁護士席 enough to join 臨床の 裁判，公判s in Canada but while her doctors said that they would not stand in the way of a 移転, her family say the 報告（する）／憶測ing 制限s stopped her from 公然と fundraising for the £1.5million needed for the 旅行.

Sudiksha, who 苦しむd from the same rare genetic mitochondrial disorder as little Charlie Gard, was 認める to Birmingham 's Queen Elizabeth Hospital in September 2022 after 契約ing Covid. Pictured: 老年の two

Sudiksha's parents, who were 軍隊d to give up running their shop to care for her when she was moved to the 集中的な care 部隊, continued to receive 支払い（額）s from the department. Pictured:?Sudiksha with her mother 老年の five months

At the time of her 事例／患者, Sudiksha, who could be identified only as ST because of a draconian 法廷，裁判所 order which was 解除するd after her death, was fighting in the 法廷，裁判所s to 証明する she had the capacity to 決定する her own 運命／宿命. Pictured: Sudiksha 老年の 17

Sudiskha had hoped to get 井戸／弁護士席 enough to join 臨床の 裁判，公判s in Canada but while her doctors said that they would not stand in the way of a 移転, her family say the repo rting 制限s stopped her from 公然と fundraising for the £1.5million needed for the 旅行. Pictured: Sudiskha with her family 老年の seven

Doctors 扱う／治療するing her argued that, 予定 to her 悪化するing and incurable 条件, the kindest course would be to 'de-増大する her 集中的な care' and make her as comfortable as possible. Pictured: Sudishka's 10th Birthday party

Her parents, who sold their family heirlooms to 支払う／賃金 for lawyers to fight for the 権利 to continue her 治療, had used the child care 支払い（額）s to help cover day-to-day expenses

Doctors 扱う／治療するing her argued that, 予定 to her 悪化するing and incurable 条件, the kindest course would be to 'de-増大する her 集中的な care' and make her as comfortable as possible.

Her parents, who sold their family heirlooms to 支払う／賃金 for lawyers to fight for the 権利 to continue her 治療, had used the child care 支払い（額）s to help cover day-to-day expenses.

'We were with our daughter 24/7, my wife didn't leave her 味方する and we had to give up running our shop,' Mr Hemachandran said.

'We relied on the 支払い（額）s for our day to day expenses. It was used to buy food in the hospital canteen and the cost of the constant travel to and from hospital.

'I was updating 全世界の／万国共通の Credit all the time. But now they are 需要・要求するing the money 支援する. It's creating more hardship and 重荷（を負わせる） for me…I am already struggling to make ends 会合，会う.'

As they continue to grieve, the devout Christians 直面する a £4,738.80 DWP 法案. They were told Sudiksha was classed as '一時的に absent from the 世帯 for more than six months' and therefore they were overpaid between February 2023 and July 2023.

As they continue to grieve, the devout Christians 直面する a £4,738.80 DWP 法案. They were told Sudiksha was classed as '一時的に absent from the 世帯 for more than six months' and therefore they were overpaid between February 2023 and July 2023.

Andrea Williams, 長，指導者 (n)役員／(a)執行力のある of the Christian 合法的な Centre which is supporting Sudiksha's family in their fight for 司法（官）, said the 法案 should be waived

Brother Varshan with Sudiksha when she was seven years old in 2011

Sudiksha Thirumalesh in her school photo 老年の 12

Mr Hemachandran すぐに requested a '義務的な reconsideration' and にもかかわらず a 嘆願 for leniency because of their 悲劇の circumstances, the family was told the 決定／判定勝ち（する） still stands.

In a letter 調印するd 'Office 経営者／支配人', the DWP 認める the family '絶えず kept UC up to date with all the 関連した changes.'

It 追加するd: 'While I 認める and sympathise with the 状況／情勢 you were in ... I am unable to 除去する the overpayment as you would not have been する権利を与えるd to the child element from six months after her admission to hospital and for the 目的s of UC, no special circumstances 適用する.'

Andrea Williams, 長，指導者 (n)役員／(a)執行力のある of the Christian 合法的な Centre which is supporting the family in their fight for 司法（官）, said the 法案 should be waived.?

'A good and humane society does not 扱う／治療する a family in the middle of such a 悲劇 like this,' she said. '軍隊ing them to 返す the money is not in the public 利益／興味 and it should be waived.'

The family was left 荒廃させるd after a 裁判官 支配するd that Sudiksha 欠如（する）d the mental capacity to make her own 決定／判定勝ち（する）s and that her 運命／宿命 must be decided by the 法廷，裁判所s.?

The remarkable 十代の少年少女 died of a cardiac 逮捕（する） just days after speaking to the Mail about her ordeal and her 決意 to fight the 事例／患者 from hospital.

Her family is 始める，決める to continue her 戦う／戦い in a 審理，公聴会 at the 法廷，裁判所 of 控訴，上告 on Wednesday.

A DWP 広報担当者 said: 'We 表明する our sympathies to Sudiksha Thirumalesh's loved ones and are 行為／行うing a review of this 事例／患者 as a 事柄 of 緊急.'